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Fecal Incontinence in Primary Care Consortium

Patient-Centered Outcomes

Project Overview:  New models of health care emphasize the critically important role of primary care in managing patients’ health. However, primary prevention and management of conditions can only be addressed by primary care teams when there is open communication about ailments. Unfortunately, some conditions, like fecal incontinence (FI), are often unreported in primary care. FI is defined as accidental solid and/or liquid leakage of stool or mucus. Estimates of prevalence are not precise, varying between 7- 15 percent among community dwellers. Though management of FI in primary care can be successful, patients are often embarrassed to discuss their condition with their provider and, similarly, primary care providers rarely screen patients for FI. As a result, many patients live silently with FI, often feeling stigmatized and with reduced quality of life. Currently, there is no consortium committed to improving the screening, diagnosis, and treatment of FI in primary care. 

The long-term objective of Tier I funding is to use the skills, knowledge, and strength of the developed consortium to develop a successful research proposal that will improve the lives of patients living with fecal incontinence. The aim of the project over the course of the Tier 1 funding is to:

  1. Convene a consortium of stakeholders (patients, providers, researchers, and others) committed to conducting CER in FI in primary care.
  2. Develop a stakeholder-informed CER research portfolio identifying research gaps and topics for future research prioritized by significance, capability of being carried out, technical expertise, proposed methods, and target population.

Project LeadNicole Cook, PhD, MPA
Assistant Professor
Nova Southeastern University, Master of Public Health Program
3200 South University Drive
Fort Lauderdale, FL  33328
Office: 954-262-1505

Please consult these additional resources if you would like more information on fecal incontinence or PCORI:

International Foundation for Functional Gastrointestinal Disorders 

Patient-Centered Outcomes Research Institute 

PCORI Pipeline to Proposal Awards Initiative 

Pipeline to Proposal Awards enable individuals and groups that are not typically involved in clinical research to develop the means to develop community-led funding proposals focused on patient-centered comparative effectiveness research (CER). Established by the non-profit PCORI, the program funds three tiers of awards that help individuals or groups build community partnerships, develop research capacity, and hone a comparative effectiveness research question that could become the basis of a research funding proposal to submit to PCORI or other health research funders.

PCORI is an independent, non-profit organization authorized by Congress in 2010 to fund comparative effectiveness research that will provide patients, their caregivers, and clinicians with the evidence needed to make better-informed health and healthcare decisions. PCORI is committed to seeking input from a broad range of stakeholders to guide its work.

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